Tuesday, October 30, 2007

Day 62: Clinic Appt

John had his weekly clinic appointment this afternoon. He is now 25 pounds 11 ounces and looks great. His labs were good. His liver is holding in there, they did find that he already has some cirrhosis when they did the biopsy, but the liver enzymes are still reading normal even though his albumin levels are chronically low. The J-G tube that was scheduled for tomorrow was put on hold again, though not yet completely canceled. We are going to be giving him Gent orally to control the bacterial overgrowth for 48 hours, then start increasing feeds again. If he can tolerate increasing then it sounds like that option will be pretty much taken off the table next week. At one point last year John was up to 100 ml's per hour of g-tube feed over 10 hours at night and then 500 ml's of ceralyte over 2 1/2 hours in the afternoon and was doing pretty good until the bacterial overgrowth just got out of hand. So we have hopes that his stomach can handle the g-tube feeds and we can get him growing and gaining weight and doing well without the TPN. We did make a step forward on that note this week as his lipids are being discontinued. As always we are praying that God's will is done, but specifically this week we are praying that a little guy can continue to gain weight without the lipids and be able to advance his feeds appropriately.

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