Mark and I just went in to check on John, his days been pretty rough and he's been in bed for several hours already tonight. It was so funny, so much of a relief, that we had to leave the room so that we would wake him up with all our giggling and carrying on. John is laying in his bed with his arms stretched out over his head and his left knee bent up in the air and his right leg crossed over it, at this moment we really regret not having the camera working.
We took John in this morning to get labs done because he just didn't look like he felt all that good. He didn't look terrible, but just not his chipper self. A finger stick blood test yielded a CO2 of 8, that's critically low, thank goodness we got to have a retest before he was to go to the ER where he would have been flown to St. Louis. The veinipuncture test yielded a 14.2, still not a great number, but good enough that we got to take him home again. The plan at the moment is to run pedialyte through his g-tube through the night and go and have labs again in the morning. If his number hasn't come up from 14 then we are going to St. Louis for testing and such. So far it looks like we won't be taking a trip to St. Louis tomorrow, our little guy doesn't sleep in entertaining positions when he is feeling bad nor does he eat and he ate at both lunch and supper today.
Of course today was also the day for his RSV shot. The last one for the year and the last one that he will probably ever get. He may not have gotten them this year if his central line had been able to be pulled prior to the onset of RSV season. Thankfully he has had a good winter for those things and only a couple little viruses and no major ones. It was of course the last time that our home health nurse will be visiting and this time we were glad that she was able to bring along her daughter. John enjoyed getting to have the charming little girl blow bubbles for him while he was getting over getting shot in both legs. Our home health nurse, Dina, has been a great help and we have truly appreciated her.
We'll update in the morning after labs, not obscenely early of course, so probably more like noonish before we get back home and have a chance to update.
The Food Adventure Continues
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I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
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