Serendipity

The happy accident took place this morning when we got to school. The new rig for John's enteral pump was causing a little trouble on the way in and so John and Gina went on in without taking John's special support chair while I got the pump squared away and brought it and the chair in about 3 minutes later. By that time his speech therapist Amy had him sitting in a regular child's chair and he was doing well. She had only ever seen John in his chair and didn't know how well he was doing sitting up by himself. So now, unless she calls us ahead of time, we are to leave his chair at home and therapy will take place with John sitting on the floor, on a little kiddie couch or sitting on his mom or me. Speech therapy went very well with him responding verbally and generally being too much of a cutie patootie.

We also went to his audiologist who made casts of his ears for new ear molds and took care of the routine maintenance on his hearing aids. It was so surprising how much bigger the casts were than the original ones made the last part of November. The audiologist was so impressed with how well he's doing, how much he's talking, and looking forward to seeing what he will do next.

John was a very good boy when we went to the lab for his blood tests, All the lab staff were so glad to see how well he's doing. They decided to use a smaller lancet and stick his finger on the side instead of the tip. It took a little more time to get the blood, but he stopped bleeding before we got home.

We put him down for a nap as soon as we got home, and a couple hours later he was awake again to enjoy some chips and stuff and watch a little tv with us before saying prayers and going to bed. It was so interesting and funny during prayers, he has become so attentive and often folds his little hands like his mommy and daddy, and he did so tonight but towards the end when we sing a hymn he decided to join in by grabbing his nose and snorting. Too funny.

He has made it through the entire day without needing a breathing treatment or decongestant and we are praying that we have turned the corner and seen the last of this nastiness.