Medicine changes aren't fun

John is just starting to settle down and get to sleep. We have been working on a couple medicine changes and they have not gone as well as hoped. So we are taking a couple of those inevitable backwards steps but those are only ever temporary. Given a few days I'm sure he'll be ready for a few steps forward again.

He did have a fairly good day despite the med changes. He played well this morning and had a ton of french fries for lunch. After going for labs he kept pulling the band aid off his finger and bleeding everywhere, at one point he seemed to be trying to paint with his bloody finger - this is not always appreciated by passersby ;-) At the moment he is keeping the bandaid on his finger and hopefully by the time he has gotten it pulled off again his 'finger paints' will have all dried up. What a silly boy! He had a fun time at Wally World with a couple of the girls from church who got big smiles out of him when they let him hold their cash.

Our best guess is that if he makes it through the night without puking, he'll be fine. If he throws up we'll be headed to Columbia to get him some fluids. He tends to throw up when his CO2 level gets low, it was 18 at labs, which is low but not critical, and since we are giving him Bicitra, a medicine which helps increase CO2 levels, back at his regular dosage and feeding him Ceralyte, an electrolyte replacement fluid like Pedialyte but more effective for short-gut kids, through his g-tube we are hoping that it will pick up and he will be full of silliness in the morning. At any rate I'll post again in the morning with his progress through the night.