Thanks be to God that we have had a quiet day today, and we continue to pray for quiet and uneventful days to come. That will be the way of things for the current time if we are to see John recover and come through this challenging experience.
9am The night went rather quietly with me only coming over once at 4a. John was distinctly unhappy when the nurse was doing his routine even hours care and it dawned on me that his hearing aid battery might have died. That's what it was and the rest if the night went much smoother and this morning finds him down to one presser and holding steady. We still have no answer as to whether he will go back on dialysis or not, but his weight is 12 kilos too high due to fluid so it's looking more and more like he probably will even though he is not having remarkably worse kidney function numbers. The plan for this day is to be extremely boring, it's at least or goal.
11am Rounds have come and gone. Dialysis is still being considered but holding off a bit longer, other than that John is progressing well but still very critical and tenuous. Mark was able to ask the surgeon about going home and the surgeon told him that 'he would be to nervous to send him away right now, things could still change in a heartbeat.' I am sad that John is still that sick, I pray that each heartbeat brings him more strength and stability but I am very selfishly happy to keep the other half of my heart close enough to touch.
9:30pm John ends this day one tiny baby step ahead of where he started with regards to holding his blood pressure steady and a tiny little wean on the vent. He is still needing help maintaining his body temperature and his little kidneys, while still putting out urine are still not being able to do their job entirely. We are thankful that we had one more day with John and pray to have another, and a nice long boring one at that!
Today's FaceBook updates also demonstrated a reality that we are seeing personally here in the interactions we are having with doctors, nurses, and hospital staff. Faith is becoming more transparent and intentionally shared with us as John's parents.
Our friends on FaceBook shared a special Bible verse and prayers that were part of their Advent Worship last night. As Gina begins to get some much needed sleep I add these for your meditation and prayers.
Psalm 68:3 The righteous shall be glad;
they shall exult before God;
they shall be jubilant with joy!
Lord God, You have called Your servants to ventures of which we cannot see the ending, by paths as yet untrodden, through perils unknown. Give us faith to go out with good courage, not knowing where we go but only that Your hand is leading us and Your love supporting us; through Jesus Christ, our Lord. Amen.
O Lord, God, the life of all the living, the light of the faithful, the strength of those who labor, the repose of the blessed dead, grant us a peaceful nig...ht free from all disturbance that after a time of quiet slumber we may by your goodness be endued in the new day with the guidance of your Holy Spirit and enabled in peace to render thanks to you, through Jesus Christ, your Son, our Lord, who lives and reigns with you and the Holy Spirit, one God, Now and forever. Amen
The Food Adventure Continues
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I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
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