Friday, May 12, 2006

Just a swinging!

John's day has been wonderful. This morning started out with a poop story - sorry about that but in the life of a short-gut kid it's pretty central. He woke up with no poopins in his diaper, that was shocking, and he wasn't distended or throwing up or any of those things that has taken him to the hospital for a while after his poops really firm up. We called his GI nurse practitioner and she is ready for us to start making med changes again. Phew! I knew we would come through this respiratory virus and med incident but it would take a while, and it looks like we are finally there. So we are once again taking little baby steps towards weaning John off of or at least lowering the doses of some of his medicines again. We're thrilled to see him take these baby steps forward!

Blueberries for breakfast, oh how he loves those. We buy a frozen berry mix and eat it on cereal most mornings and he loves the blueberries after they've thawed a bit. Mark and I now pretty much eat a blueberry free berry mix, and our little silly guy has blue lips and tongue after breakfast. We took him out for a walk in his gait trainer this morning and he did very well. He was fascinated by the shadow that he cast on the ground and then when he got over that we were near a tree that's limbs were being blown around pretty good by the wind and he really enjoyed watching that. At the end of our walk Mark went back to get the jeep and picked us up so that we could go to the park. It's not that far away, but a little too far for John to walk it quite yet.

Today is the very first time that we've taken John to the park, truthfully it's the very first time that we've been to that park. Anyway we put him in the little kid bucket swing and he got a good tight hold on the front and you could just tell he was tensing up for the worst. We pushed him just barely and he was okay, then we started pushing him progressively higher and the higher he got the bigger the smile was. Finally we had him swinging as high as we were comfortable pushing him, high enough that we could stand up straight and push from about shoulder height and he was loving every moment of it. He was a little upset when we took him out and found the little rocking horses to be okay, but really he'd rather be in the swing. The first time down the slide was okay, and the next couple times was okay too and we thought he might not like the slide very much. But after we had swung some more he was holding his arms out to the big slide. Now we started him on the itty bitty slide with one of us on each side as he came down making sure that he didn't go too fast or anything like that. That was okay, but he enjoyed it much more when we put him on the big slide, laying down on his back and daddy caught him at the bottom. The park was a hoot and we are looking forward to going alot this summer.

When we got back from the park John ate a good lunch, for him, and then was ready for a nap. Since getting up from his nap he has been our cute little destructo-puppy, tearing up anything that he can get close to him and loving every minute of it. He's starting to yawn now and we're getting ready to put him down for bed, but wanted to let all know that John was great today.

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