Sorry for the poopy title, but in the life of a short-gut kid, especially one with kidney issues too, potty talk is pretty much the norm. Today is the very first time that John has had anything even remotely resembling a good poop since he became ill on Good Friday, so we are celebrating poop.
It was also a good day for several other things. School went well. John sat up through most of his session and cooperated and even talked a bit. He talks more at home than he talks for Amy, his therapist, but that's pretty normal for kids. Our homework assignment for the week is to work on big mouth movements, like those made for saying vowels. John has gotten really good at sticking his tongue out again and so we're on to other fun things like holding his mouth open as far as he can. At Sam's he suckered the sample lady into a sample just for him, he plays shy with her but she's a real sweety and talks to him every time we go. On the way home he napped on and off and after we got home he napped a little more. While Mark was gone to confirmation I got him up and put him in his gait trainer and he loved it, had big smiles and was ready to 'go, go, go' right up until his pump bag fell and startled him, that was it then he threw fits and cried until I put him back to bed. It was obvious that he was just a little worn out guy but I'm really looking forward to putting him in the gait trainer tomorrow. Today he even stood up while I hooked up all the gear for him, so that was a big improvement! After Mark came home John got up and shared some supper with us. He's eaten very well all day and tonight he ate some spaghetti and garlic toast, but it wasn't too long and he was ready to go back to bed. All in all he's done very well today and seems to be getting over all the ills of last week.
The Food Adventure Continues
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I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
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