Typical?

This day started so typically. Screaming from the kid down the hall and frustration. But between Mark helping by talking to me, Rothbaum and Hanna coming in and most of all Pastor Asbury bringing the Easter story and the Lord's Supper it is much better.

John slept well until 4 when Karissa changed his poopy pants out of pity. Then I moved him and he slept with me. But with no peripheral IV and only the lines that I'm used too it was much more comfortable, even on the hospital 'couch'. The bonus of having John sleep with me was that I realized he was tight and in trouble before he puked. I think he got a shot of full strength formula by accident last night - maybe not, but that would be the easiest explanation for this morning. A little puking, not much, a little venting and a couple hours off then 3 watery stool diapers and we're back to normal.

Pastor Asbury came by. He's from Wyoming and he looks so familiar. Too funny - black cowboy boots and dress western pants just like Mark. He has a beautiful communion kit, much like what Mark wants to develop his into. But most importantly he came with the good news of Christ's resurrection and forgiveness for my sins that I could taste, feel, and smell. He's going to continue to see us as we are here and any time we come back we just have to email and let him know and he'll come help us stay connected!

Carla came in to visit. John just loves her and she is so sweet and nice to him. Later she came back with a little green Easter bunny for him. People here are so nice. The lady from Child Life came by with a balloon and a blanket after his surgery - and everyone comes by and makes him and us feel loved.

Rothbaum and Hanna came today. Rothbaum is so intense - he kinda overwhelms John with attention and then by the end John will smile and talk to him a bit. They were pleased with progress so far, said that the goal is 45 ml/hr total fluid intake for now and that they are already going to start turning down his IV fluids. It will be interesting to see what the rate looks like tonight.

Shelly is John's nurse today. No PCA. She is very kind and sweet and nice to work with. She totally understood about having nothing to do around here and let me mix John's formula. I took John out with me to give it to Carla for the fridge and he had a great time. I sat him on the counter and he 'talked' to Carla and the other nurses and finally about the 5th time that Hanna walked by he stopped to play for a minute and John finally smiled just for him!

Lunch was ho hum as always but afterwards we walked down to the gift shop to get a bunny for John's roommate. She is so cute and she's here through Easter too. She and her mom speak no English and of course I speak no usable Spanish so it's hard to communicate even with the husband who speaks some English. But they are the nicest people, one of the best roommates that John has had.

PT came by to evaluate. She's going to recommend 3x week in the gym, hooray, out of the room. She agrees that we need the chair and also said that we need a standing fram at about 18 months to help him bear enough weight so that his hip joints develop properly. She also said no sleeping on back anymore - only side to side and that tummy time is important of course.