Tuesday, March 29, 2005

Together Again

Jesus Christ is risen! He has risen indeed! Alleluia! Alleluia! Alleluia!

Mark came on Easter evening and brought us just what we needed - him! We miss him so much when he's gone. He also brought the Lord's Supper which we shared to evening prayer. I am very thankful for Mark, my good and faithful husband who is also my good and faithful pastor!

Monday morning brought sunshine and John looking great. Of course it made thoughts of getting out of the hospital dance in our heads but that won't be coming on a permanent basis for a while. However we did get a day pass!

John's first PT and OT in the gym went very well. I still like Paul Chang best of all for home, but while here I'm glad that this time he's seeing the actual therapists and not just their assistants! They showed us a different way to lay him on his side - we'll be trying that for nap time today. I am thankful for St. Louis Children's Hospital and their wonderful staff!

After therapy we saw Sharon real quick and she is going to pursue his chair! We're always thankful for Sharon!

Susan was our nurse yesterday. She is a kind-hearted, gently soul and a great advocate for her patients. We've not had her since John's initial stay or so but we've always like her. She brought in 2 pm meds early so that we could be on our way. She's our nurse today too and that is definitely something we are thankful for!

John's very first zoo trip was yesterday. We had a great time, he watched the people and at one place he watched the fish too. He did pretty darn good for his first try to sit up in his stroller like a big boy for any length of time. The zoo is full of good memories from my childhood and even as an adult going with Mark. It is our plan to take John lots and lots, we hope to go each month or so that he has appointments and maybe another leave during this hospitalization too! WE are thankful for such a good zoo, so close and free!

Dinner was at the Macaroni Grill. Wow! The very first time since we left New Orleans that we have had that fine quality of food. Certainly a place to which we would like to return. I had the fillet with a light blue cheese served in garlic mashed potatoes with sauce. Oh my! And the cheesecake - well let's put it this way, it was better than mine! I am thankful for God's blessings of good food, great cooks and good company to eat it in!

A trip to Walmart for necessities rounded out a really good day. John puked throughout the day but remained our smiling happy boy. Coming back to the hospital wasn't even too bad. Becky was our nurse for the night and she is always a joy! I am very thankful for such good congregations that allow us to have time together!

Jesus Christ is risen! He has risen indeed! Alleluia! Alleluia! Alleluia!

This morning brought not so great lab numbers, big poopins and tons more puking. Thank God Susan is back. A 75mL fluid bolus and John is perked up some. I personally think he could have used some more! They are putting him back on contact isolation until a stool culture comes back negative and of course they want a urine culture also. We're kinda thinking a UTI looks likely but hopefully not. I am thank to have John here where he is well cared for!

Something new happened. Mark who has always been a good and loving dad has started focusing more on John without sideline distractions. I've never met a better dad! I'm thankful for this wonderful man who loves us!

Jesus Christ is risen! He has risen indeed! Alleluia! Alleluia! Alleluia!

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