3 1/2 tsp, 16 mL's a little over 1/2 ounce per hour is the rate increase that John has had on his formula since Friday. This from the child that has until now never made more than 1 mL increase in a day. And it came with no puking, no explosions from the other end, no g-tube leakage and no fussy, upset pumpkin. So John is now at 80% of his caloric needs being met through formula. There is now a real discussion going on about him not needing his broviac replaced - where that will go we don't know at this point, but this is the first time it has even been a possiblity.
Other than this feed increase there is more good news. John has gained weight, the first weight gain since he was discharged from the hospital before Christmas! Just a couple ounces, but the first time the scale has said anything higher at all.
And more good news. Everyone that knows John - and there are lots of people here that do says that he looks better and more healthy than they have ever seen him before - and he does. He looks fantastic. His coloring is beautiful, less jaundiced and his cheeks are nice and rosy. He is talking up a storm, entertaining everyone that looks at him and in general having a great time.
John's last dose of fluconazol is on Wednesday, he is scheduled to have his broviac replaced on Thursday. Also on Thursday we are supposed to be discussing the STEP procedure again, and home on Friday.
How things will actually go is anyones guess from here and all in God's will!!! What we have seen this weekend has been awesome and we thank God for how wonderful our little pumpkin is looking and doing. We also thank Him for each of you, for your love, prayers and support. We'll write again later in the week and let you know how things are going. Love and prayers, Mark, Gina and John - who is now sitting up in his stroller like a big boy (not in the car seat) reaching for the toys on the tray with his one un-IV'ed hand.
The Food Adventure Continues
-
I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
No comments:
Post a Comment