...okay and a little scary too, but the excitement is overwhelming.
John has been accepted into the Bowel Rehab Program, medicaid is on board, and we will be taking him from Columbia to Omaha, NE tomorrow. He will undergo a lot of testing and consultations and then treatment and could be there from 3 months to a year, that part is a bit scary but getting to see him put on weight and grow will be amazing to watch. He's such a smart little guy now, I can't wait to see how he does with full nutrition on board.
I was very specific to tell these docs that John has prune belly syndrome too, and was thrilled to tears to hear that they have another little patient, a 5 year old boy who also has both short gut and prune belly and though he had a rough go of it for a while he is doing excellently and is heading off to school this year. It's so good to hear that John's not alone, that there is another kid and he's doing great.
We are excited, thrilled, and can't wait to see what God has in store for John in Omaha. Thank you for your continued prayers, and we'll update as often as we are able.
The Food Adventure Continues
-
I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
1 comment:
Great News! We'll be checking back to find out the latest.
Post a Comment