A Long Awaited Update

Tomorrow will mark the 2nd whole month that John will have not been to the hospital for anything, admission emergency room or otherwise. We will properly celebrate by staying home. John has done pretty well for the past few days. After the accidental overrate on his formula last week the GI team was encouraged enough to try and see if a 500 ml bolus every 6 hours would work. The first 24 hour cycle with it John was doing alright, his appetite picked up and he was having no hydration issues. But by the middle of the second cycle his stools became looser and more frequent, though not a great deal more volume to them. We decided to go back to his previous routine and his system has been recovering slowly.

We also have had a medication change. We had been having problems with one of the anti-biotics that helped to manage that bacterial overgrowth issue John has. The GI team switched to a different anti-biotic that John has used before, a powerful one called Cipro. We give John one dose a day and so far we have had no adverse reactions and his poopins have improved some since we started.

This week is going to be a busy one at home for John. We are looking forward to him modeling a new outfit designed and tailored by his talented mom and getting the pictures and all those things necessary for that outfit to go out. We are also looking forward for John to get to see his physical therapist, Paul, who hasn't seen John in almost 18 months. It will be a big day for John and Paul. This week is also important because on Friday we are going to be going up to Iowa to see the God-Cousins and celebrate the fourth with them.