The past couple days have been a joyful adventure as John improves and demonstrates that, while tired and weak from his 46 days of sedation and ventilation, he is still very much our little boy who went to surgery on the 15th of November waving bye and blowing kisses.
Monday
7am John is sating 97 on room air and woke enough to give us kisses when we came in :)
10am Mark sang 'So Long Fare Well' to the vent as it left :)
We did find out that John has a particularly plastic loving yeast growing in his urine and so today all plastic has to be changed or removed.
10pm The line change outs went well, John remained off the vent and spent most of the afternoon and evening cuddled up in a chair with his dad. Through the day we have seen more signing, counting with me this morning, choosing a blue blanket by color and telling us potty. The bleeding is being watched carefully and will be readdressed tomorrow. Good night and God bless you.
Tuesday
7pm Kisses in the morning, going potty on the potty, evidence that John's colon is fine hanging out in there waiting to be reconnected some day, sitting up in a chair with real clothes on waiting for friends and then a wheel chair ride with them, and now cuddling with dad with only green coming out where it should, God is merciful indeed.
As you can see once again there will not be much said when all is going well and John is on the path of healing and recovery, there is simply too much cuddling with and taking care of him that needs to be done. I will still be compiling and sharing updates, but do not fear and wonder if something bad is happening if there are no posts from me for a couple of days at a time.
Here is a picture of John and his friends. 6 little monkeys playing in the PICU.
The Food Adventure Continues
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I started this blog when we started changing the way we eat. Finding out we
needed to be gluten free, actually for me wheat free, was a huge big deal.
Late...
1 comment:
I'm not sure how I happened upon your blog over a month ago, but I continue to check in daily for news on John. Your little man seems to be such a wonderful blessing to you family and so much fun too. I am a special education teacher and I have loved looking back through the years of your blog and seeing how far John has come! Hope all is well and can't wait until you can all be back home again as a family.
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